Cesare Zambon, a 6 -year -old boy from Conegliano suffering from neurofibromatosis, did not make it. The news was communicated by the mother, Valentina Mastroianni, through the account “The story of Cesare”, where she had told the daily battle against this rare genetic disease.
The story of a courageous struggle
Valentina Mastroianni had shared the story of the son both on social media and in the book entitled “The story of Cesare”. The disease, which over time had also led to the blindness of the child, is a rare genetic condition that leads to the formation of different tumor types. In recent times, Caesar’s clinical picture had worsened.
A transfer to look for better care
To guarantee Cesare the opportunity to access more appropriate treatments, the family had moved from Conegliano to Genoa. The baby had been entrusted to the care of the Gaslini pediatric hospital, but unfortunately, this morning, Cesare left this life.
The words of a grieved mom
On the Facebook profile “The story of Cesare”, Valentina Mastroianni shared a moved message dedicated to the son:
“Hi Cece of my heart, you were courageous, without fear, until the end. Surrounded by our love, thanks to the angels of the shell, you went away from this life you gave so much, without asking for anything. I did you one Promise: don’t be angry with this life.
An in -depth analysis of type 1 neurofibromatosis
There type 1 neurofibromatosis (NF1) It is a complex rare genetic disease, with dominant autosomal transmission. A precancerous syndrome is defined, since those who affection have a higher probability than normal to develop neoplastic diseases. According to the Rare Diseases Observatory (Omar), in Italy at least 20 thousand people suffering from this condition are. The international day on neurofibromatosis is also celebrated on 17 May, an opportunity to raise public awareness on this pathology.
Caesar’s disappearance represents a painful moment for the family and for all those who have followed its history, a symbol of a courageous battle against a difficult and complex disease.
