Comedian Doully, suffering from Charcot-Marie-Tooth disease, is sometimes the target of detractors. Some believe that her state of health is not as serious as she suggests…
Comedian Doully, who suffers from Charcot-Marie-Tooth disease, is regularly criticized on social networks… because of her disability! The artist practices sport regularly and many Internet users suspect her of exaggerating about her state of health.
Doully, facing illness: “It’s a condemnation”
A few years ago, the comedian discovered that she suffered from Charcot-Marie-Tooth disease, a degenerative neurological disease which mainly affects the extremities of the body and which ultimately leads to a loss of autonomy and progressive paralysis. To try to stay as fit as possible and delay the onset of symptoms, Doully tries to do sports sessions regularly.
“There are quite a few people on the networks who see me doing sports like crazy, who see me dancing salsa, samba, funk, almost everywhere“, she explained to FranceTV Slash. But, his disability being invisible, many minimize it. Some Internet users question the reality or seriousness of her illness and believe that it would be incompatible with the image of a sporting woman that she projects on her social networks: “They say: ‘ok, supposedly, the girl is disabled, apparently everything is fine‘”, she regretted.
But the almost 40-year-old comedian wanted to dot the i’s: these sports sessions are essential to him. “People don’t know that with my illness, I am condemned to having to do sports every day of my life. Otherwise, my muscles get damaged“, she explained before adding: “Truly, it is a condemnation. That is to say, we tell you: ‘Yeah, it’s cool, you look in good shape’. But I have no choice!“
Doully and his disability: “The feeling of having your spine rolled over”
It is also partly because of her illness that Doully never had children, considering that she could not have the time or the capacity to take care of them: “A When could I do so much sport and so much activity with a kid? Even just one! Because sport takes me 2-3 hours a day. So even that is complicated“.
On a daily basis, Doully must deal with this invisible handicap which constantly gives him “sensation of being rolled over the spine“, she detailed to Konbini. The illness also impacts the way in which she exercises her profession as a comedian: “You can’t stand for long. Either I’m attached to a microphone stand, it’s my stage cane, or I have a high stool“.
